Mana Online

Thursday, October 19, 2006

Damn chronic illness

Just to start I want to point out that I'll be fine. I just want everyone to know whats happening. We all know too well about how much a role asthma has in my life. Chronic disease is like that, you just learn to live with it. I do pretty well if I do say so myself. I dont let it control my entire life even if it does restrict me from things. Anyways the last few weeks have not been good ones for me health wise. Two colds in a months time is never good. My PFTs ( Pulmunary Function Tests) have been consistantly low no matter the increase in meds. As of this morning I'm on 50mg of predisone, 2 inhaled steriods (symbicort and qvar), allgery reliver, singular, biaxan, nexium, uniphyl, a bone drug that I can never pronnounce, my ventolin by mask and inhaler, along with b12 and iron supplements. Yea yea sucks to be me lol. Its very frustrating to say the least. Mostly with the predisone increase. Predisone is an oral steroid and its pretty much multi-purpose drug used for everything from cancer to asthma but long term, the side effects are pretty bad. We have been able to prevent anything serious like bones and sight problems but the weight gain is very hard on me. I feel as though everytime I lose a certain amount it comes back 2 fold because my asthma will act up and the predisone must be raised. There have been issues with mold in our bathroom and kitchen and the owners of the building here SUCK. They've actually waited months before doing anything. I feel so bad for Lee and Jen, they are just as, if not more frustrated then I am with that situation. The good thing is I have a great respiroloist and between him and my nurse (who I adore) we'll work it out. I must be heading to the hospital right now...stupid more meds to put me on. I will keep you all updated. Please, please, please dont worry too much. I didnt write this so everyone can go crazy with worry, I just could use some family support when I'm sick.
Love you all XOXO
Mana

1 Comments:

At 8:38 PM, Blogger Jen said...

We will fight them tooth and nail untill it is all done!!!

I know it has been soo hard on you, and if people are sick and don't have a lot of emotional support it can be hard. Please know that we really are trying to get things fixed for all our sakes. fight the good fight Mana

 

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